Where do you find health information?

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  • Where’s the first place you look for information when you have a health information need? Do you have a favorite go-­to resource (e.g. website, friend, sister who’s a nurse)? Do you always follow the same information seeking routine, or does it differ depending on the circumstance?


  • Aside from health care providiers, I get almost all of my health-information from the internet, though I am very careful about which websites I choose. #internet #information

    • When you say careful – may I ask what you mean, or in other words, how do you assess the veracity of a website?

      • There are certain sites that I trust — I look to see who has produced the information. Mayo Clinic, Web MD, .gov domain sites (e.g. MedlinePlus) — or other familiar health care providers (such as other well-known hospitals in addition to Mayo). If I know what the preeminent professional organization for the disorder is, like the American Cancer Society, I would also trust those.

        #internet #information #resources #trustedsites

  • Me too. Well that’s not true. First I ask my husband, he has a lot of knowledge/experience with many health afflictions, but if he’s not around I go to Google. I work in health care, so I have a sense of which web sites are reliable. If I happen to be with someone (nurse or doctor) who might be able to answer my question, I ask them. #healthinformation

  • There are too many health related sites on the internet, and sometimes you’ll fall down a rabbit hole of despair as you learn about your condition. I have multiple auto immune problems and reading all this stuff you’d think I’d be disabled or dying by now. To keep things in perspective I search for blogs by individuals who share a condition with me. Some of these folks have been at it for more than a decade. I get more of a day to day sense of what life is like for them as a person who copes with it while juggling every day life. It’s more realistic, personal and less frightening than reading lists of worst case scenarios, mortality statistics and medication side effects. In some cases it can even show me that I really don’t have it so bad in comparison.

    • I know what you mean, sometimes the information on the internet is overwhelming and even frightening, and hard to sort through, while turning to other folks with the same/similar conditions can be affirming and reassuring. #patientexperts

  • I have access different sources depending on my needs and availability vs accessibility of information

    1. National health professional sites ie NICE Guidelines, British National Formula (BNF)

    2. Forums

    3. Web – reliable sites for general information

    4. Friends

    5. Reserch Database ie Cochrane

    6. National Support Groups resources

    7. General media for upcoming discoveries, etc

    #Reserch Database #Forums #National Support Groups

  • I find getting information difficult, due to conflicting Health care providers opinion and current trends in medicine.  What works for one can cause problems for another. I do use the Internet to research the medical opinions and to be aware, almost my own advocate, at appointments.  I’m lucky to have a few friends in the medical profession but even they saw there can be conflict and misinformation.  This does not provide a holistic approach, which I have sought and I find active groups of sufferers can be a fantastic support and holistic information source, as can local charities. Face to face discussion groups usually prove enlightening. #holistichealth #supportgroups # let’s talk #mutualsupport


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