Search Results for 'migraineur'

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    In reply to: Introduction to Week 1

    Awaken with daily migraine; takes me half- hour to one hour to take additional meds, and relax enough to get out of bed. Since I’m already a night-owl, this is anywhere from late afternoon, towards evening.Theodore Roethke wrote a poem about slow waking. I think it’s a Sestina? (Theodore Roethke)

    #migraineur #daysnightreversed #migraineuponwaking #slowgettingoutofbed #TheodoreRoethke #Sestina


    Managing pain can involve monitoring frequency, intensity, and a host of other variables – with the idea that long-term observation can help pinpoint triggers and lead to more effective treatment. Below is my experience with tracking my migraines. Tell me about yours! How has it helped or hindered you in managing your condition?

    There are multiple headache diary apps and my GP immediately told me to start tracking potential migraine triggers (which include a long list of foods, all types of alcohol, weather, stress, sleep, et cetera). To my surprise, when I showed it to my neurologist (a diary I’d been keeping with some diligence for nearly 6 months) he barely looked at it, waved it off and said, “You get them or you don’t. You do! If you notice huge increases or a particularly strong correlation, tell me about it, but otherwise, just take your pills.” I still feel conflicted about his response, as I’m not sure if the diary is a proxy to help migraineurs feel in control (and it is helpful in initially gathering data/trends) or actually provides meaningful insight into the condition. (There are so many potential triggers, is it just one? Is it the combination? Does it depend on the amount/size of the trigger? Sometimes I’ve had a sip of alcohol that’s triggered it within minutes, other evenings I’ve had three glasses of wine and felt no effect).

    #deardiary #trackingthepain #monitoringmadness

    Samantha Kaplan

    For many, their first instinct to resolve pain is to take a medication of some kind. Few conditions come with a miracle drug that removes the symptoms without imposing some kind of side effect. For most migraineurs, they are first prescribed a triptan of some sort to treat their headache. It comes with several warnings, as most medications do, but they include two that are particularly frustrating. The first is a short-term issue – they cause immense drowsiness (in me), meaning that while I might be pain-free I’m still somewhat useless for a similar period of time. Even if the migraine is gone, it sort of “won.” The second issue is one of long-term concern – migraineurs must be careful when taking triptans as it is possible to enter a withdrawal loop from the triptans that causes migraines. It sometimes makes me wonder “is it worth it?” but also, makes it harder to manage the migraines. Is it better to semi-function in pain if I can’t spare an hour or two to take a nap? If I take it too many times will I end up in a self-fulfilling migraine prophecy?

    How do medications help or hinder you in managing your pain?

    #paincations #painorfog #mymedicationmessesmeup #Idonttrusttriptans

    Samantha Kaplan
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