Fibromyalgia has been very isolating experience for me. The “adrenaline rush” kicks in and I gain a lot of energy and enthusiasm being around others. Fun activities help me to distract me my pain and focus on an exciting & enjoyable experience. I still have my limits even during the most fun activity. If the lights are too bright or music is playing too loud I can get a migraine. I am not shy about asking to have lights and music turned down.
Last weekend I took a two hour art class using the ZenTangle technique for drawing artistic doodles using specific patterns and techniques. I find art and craft activities to be very therapeutic & fun. I enjoy any excuse to get out of my house & be social. Isolation only triggers depression.
I also enjoy photography. I am just an amateur but it brings me great joy to capture natures beauty or take a great photograph of an individual.I find I get lost in the moments and am not aware of the strain I am putting on my arms and wrists until after a long photography session. I need to be better about setting time limits and wearing a watch. I should set the alarm on my cell phone so that I do not overdue. I can be very stubborn and I often fight through the pain because I want to continue doing activities that bring me a sense of accomplishment and enjoyment.
Although I know my body will need a full day to recover from even a few hours of activity I find the trade of worth it. I purposely try to not schedule Dr. Appointments on Mondays because I am my most active on weekends having fun with my husband.
#Setting limits #Scheduling downtime#pain triggers#Adrenaline rush#Isolation and depression#Art is therapeutic
#Social activities # distraction from pain
# set time limits #cell phone alarm
I know I’ve hit my limit when I’m so tired my face goes numb. I don’t want to talk, I don’t want to do anything, engage, smile or even think… I want to go home and breathe deeply in the quiet. I will absolutely ignore the signs I’m hitting my limit if it’s something that’s fun or I’m really interested in what I’m doing. I normally pay for it over the next couple of days by being very exhausted and achy as a result. Pushing through is the name of the game for fun and interesting activities. During the summer, I’ll take my sons to do something fun one day and then the next day will be what we call a home day so I can recover. I’ve found that pre-planning activities helps a great deal and scheduling downtime keeps me from being put out of commission for longer than is necessary. Another sign I’ve hit my limit is that my shoulders start creeping up toward my ears as my muscles tighten up. My neck gets so achy… A hot bath and an early bedtime are lovely. #planahead #taketimetorecoverMarch 18, 2016 at 11:01 am permalink
I really struggle with fatigue, as well as tiredness, acknowledging they are two different things. I realized they were different things about a year ago when I got the Glow app for my phone – I’m nearing menopausal age and wanted to start tracking my cycles to get a sense of how long/short they were so I could pay attention to avoid scheduling things at times when I know I won’t have energy for them. In this app, they have lists of physical symptoms, where fatigue is listed, whereas “tired” is listed under mood/emotional (honestly I don’t know who makes this stuff up). With another app I have been tracking my sleep, thinking that my tiredness and fatigue could be remedied if only I got enough sleep, but despite my best efforts of getting a reasonable amount of sleep (8 hours for me), I still feel tired and fatigued all day every day.
And yes, to Gail’s post above, absolutely – I have laid down to sleep or nap and then, sure enough, my mind won’t shut off or my muscles will feel restless and sleep evades me. It’s so annoying how we can be tired and/or fatigued all day and then when it finally comes time to go to bed or take a nap, the body says nope.
I don’t push myself to exhaustion as much as I used to. I have been hopeful that by the exercise I am doing that my energy levels would improve but alas, there has been no change. I still have to give myself a big pep talk before putting on my running shoes, “ok let’s do this, I’ll feel much better after for having done it”. In fact, because of the intensity of my workouts I find I have even less energy. It makes me wonder, what is wrong with me?
What signals fatigue for me is that everything feels like I’m walking through a fog. I feel like if I were to curl up on comfy furniture that I would probably fall asleep (though that seldom happens). Mostly I push through because I have to, work must be done. I’ve noticed lately though that I don’t have time to keep my house as clean as I would like – a combination of being really busy with school/work but also just not having energy to do everything and something must give.
I would love to know what it would take to improve my energy levels. I would like to know what it’s like to not feel #tiredallthetime. Do I need to spend more time outside? Move to a place that has more natural light and brighter walls/floors? Change my diet to a more plant-based, whole-foods, raw diet? All of these things? I would love to stop clicking #fatigue on my Glow app.
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